Friday, August 18, 2006

Update on running

I started this last Monday and I ran 3 out of 5 mornings. The 2 I didn't run I slept-in instead. Oops, bad me!

I can already tell that it's helping improve my lungs! Very exciting!!! I breath so big when I'm running... I can't wait till I can get to the point where I'm running a couple laps around this block.

HERE IS A BIG SECRET:

I'm working on a website about what EXACTLY I do for my CF, I mean, I totally go into big time details, no generic "I take supplements" stuff or "I use cream for my polyps", questions are going to be answered and it'll all be legal, I just used English to suit my purpose! Hehe!

Sadly, I'm not giving out the URL (web address) yet, it's not quite finished. Just wanted to let ya'll know that I'm working on that.

For updates on my book you'll have to go to http://mycfbook.blogspot.com.

Thanks!

Sunday, August 06, 2006

Running

Out here in Texas I don't have Tae Kwon Do :( I miss you guys!!!!!!!!!!!!!!!!!!!!!

Anyway, so I'm going to start RUNNING! At 6 AM wake up and go for a run, hoping to start with 1/2 to 3/4 of a mile. It'll be great for my lungs and endurance training.

I need ya'll to keep me responsible with this so pop in now and then to ask me how the running's going, OK?

Thanks!

Wednesday, August 02, 2006

I'm in Texas

Hey! I made it to Texas! I wrote all about it on my other blog www.hopeishere.blogspot.com if you want to take a look.

Thankfully at the moment I have internet on my laptop. Hopefully it continues.

God bless

Saturday, July 29, 2006

CF Clinic July 18/06

My lung function was around 90%! Yea! I don't have a cough and it's non productive if I do cough.
They still want me to take Tobi for preventive measures but I'm like "I don't agree with the philosophy of poisoning myself better, thank-you very much".
Hello? Does this sound crazy to anyone else? And if I'm not sick anyway, how much more damage will drugs do? I don't even want to think of that.
Did I mention that I'm writing a book about my life with CF? The first draft is completed.
I updated my CF website www.freewebs.com/cflife. Enjoy!

Monday, February 20, 2006

Update

Well my health is doing great even though the doctors want me to go on Tobi and I said “NO!” hello? If I’m healthy why would I want to bring down my immune system with drugs? I’ve never felt this good before, my next CF clinic is in April, I can’t wait to see how good my lung function is then.

I updated my CF website! www.freewebs.com/cflife take a look and enjoy!
TTFN (Ta Ta For Now)

Monday, January 09, 2006

Awesome Christmas and CF song!

Christmas was awesome! I got a Tamagotchi and toe socks!

My health was great, this is now the third Christmas in a row without pneumonia, all thanks to glycos!

I’m part of this yahoo group called “teens with CF” it’s great. One our members (Cindy) wrote a song called “My Classroom” here are the lyrics: (it’s an awesome song!)

My Classroom

(by Cynthia Ray)

Days go by,
I don't know if you see
The way that I'm struggling just to breathe
Simple things that may seem easy
To me, these are triumphs to achieve

Chorus:

But there are so many lessons I've learned
I don't know how I'd know,
And there are miracles I wouldn't recognize
any other way
Any other way


Twilight falls
Dreams get farther away
Mem'ries of summer turn to grey
Darkness steals my strength and
Passion for life starts to fade

(Chorus)

Can you tell what I'm going through?
Do your eyes see what mine do?
There may be pain, but there's glory too
Do your eyes see what mine do
What mine do

(Chorus)